Annabelle's Challenge
Latest Reviews
Living with eds in the family is so very hard, every day a gift because everyday takes so much out of our bodies, and yet Annabelle's challenge finds the strength and time to not only raise awareness but to raise funds for the eds charity, there kindness and strength helps show all eds'ers great things can be achieved.
Source: thebestof.co.uk
Within weeks of my daughter's and my diagnosis of vascular ehlers danlos (the same condition as sweet Annabelle) I stumbled on their website. Through their website they provided advice, support and friendship through a very difficult time in our life. I thank the Griffin family for their understanding, kindness and passion to help others when already dealing with so much with their beautiful little princess. This site is an invaluable source of information for a condition that is so rare that even most doctors don't know about it. Keep up thr amazing work!!
Source: thebestof.co.uk
Within barely weeks of AJ's diagnosis, the Griffin's focused on turning their trauma into triumph...raising over £14k in just 12 months and in the process making this life-threatening condition visible, not only to the public but medical professionals who had never seen a case before. Annabelle's Challenge has grown to become an authoritative source of knowledge for sufferers all over the world, not only a source of support, but a source of happiness and joy as the Griffin's show that against all odds, life goes on.
Source: thebestof.co.uk
I thnk most people will do anything for their children and Annabelle's Challenge proves that. What sets them apart from the rest is how much they are prepared to give to the hundreds of other families all suffering with this same or similar conditions. I came across AJ and her family just as my daughter was diagnosed with EDS Hypermobility Type and it was an inspiration to read their posts on Facebook and see what they are doing. Faced with the awful truth of having a child with a life limiting illness has got to be every parents nightmare but they approach it with positivity, determination and courage. They have done so much for raising awareness of the condition and any recognition they receive is not only well deserved for them, but also serves to bring EDS in to the spotlight.
Source: thebestof.co.uk
Wonderful people doing a wonderful job. Nothing phases this family. They have so much determination.
Source: thebestof.co.uk
AJ and her perents are like angels holding my hand in the darkness.Because of them we feel safe through the of my sons Ehlers Danlos Syndrome. Alicja and Michal
Source: thebestof.co.uk
Fantastic information About EDS and a great way of raising awareness. Especially for me as since hearing about it via annabelle's challenge im being tested after 21 years undiagnosed
Source: thebestof.co.uk
Annabelle is a lovely and very brave little girl. All her family work so hard to raise Awarness and provide Annabelle with the best care Well done guys.!!You are all an inspiration x
Source: thebestof.co.uk
This is an amazing charity, one that I hold dear to my heart as my daughter too has EDS. The griffin family are doing a fantastic job of raising awareness. To top it off they also have a beautiful little girl. I would also like to mention their sons who are also amazing.
Source: thebestof.co.uk
I love how this family are taking on EDS.They are only a small charity but keeping it real by raising awareness as a priority over money. They have hosted some fabulous events with more to come but more than anything they are raising one very special little girl.
Source: thebestof.co.uk
Annabelles challenge has had an amazing 1st year. The dedication of Annabelle's parents is second to none. They work extremely hard to continue to raise awareness of EDS and they provide invaluable support to other families in similar situations. Well done the Griffin family. I am sure this charity will go from strength to strength.
Source: thebestof.co.uk
Amazed at the progress and awareness made so far by A/Challenge very proud my employers have supported fundraising so far and hope to continue to help raise awareness .
Source: thebestof.co.uk
All at Annabelle's Challenge should be commended and have their hard work recognised. Not only do they have the huge task of looking after and supporting a little girl with a serious condition but they are also helping raise awareness of EDS withing the local area as well as the UK. Making this condition more well known will help with diagnosing others and hopefully aid with treatment in the future.
Source: thebestof.co.uk
Annabelle is a beautiful and brave little girl.Her parents have not only taken to her illness and accepted it but have also made others aware of it too. I dont think I would be as brave. Well done guys.!!You are an inspiration to us all.x
Source: thebestof.co.uk
Since Annabelle's Challenge been formed ,There has been a lot of money raised for EDS UK. And A lot off Awareness about this illness. They have helped a lot of family's, and Annabelle is Beautiful & Bubbly & nothing seems to hold her back, We Love her to bit's.
Source: thebestof.co.uk
Two very dedicated parents to their little girl. Annabelle's challenge is a tremendous raising awareness champain backed by AJ's parents . They deserve credit for their dedication.
Source: thebestof.co.uk
:D brill, gives so much help to others and lets other people share there experience too
Source: thebestof.co.uk
Annabelle's challenge is doing an amazing job of raising awareness of vascular ehlers danlos syndrome. They are working tirelessly to do this Thiscondition is very rare and as a fellow Veds zebra I am grateful for all their hard work and commitment. They have turned their heartache of the diagnosis into a determination to raise awareness and funds for research. Their commitment and love as a family is evident to all.
Source: thebestof.co.uk
Bringing Awareness to a terrible terrible connective tissue syndrome! She's a cutie.
Source: thebestof.co.uk
annabelles challenge were there for me when my daughter was diagnosed with ehlers danlos syndrome. they gave me the support i needed during some very dark days. they deserve to be recognised for their dedication to supporting fellow EDS suffers and for gaining recognition of this largly mis-understood condition.
Source: thebestof.co.uk
A fabulous cause spreading awareness of a relatively unknown genetic condition
Source: thebestof.co.uk
WoW where to begin? well this family are an inspiration to all who receive a diagnosis of Vascular Ehlers-Danlos Syndrome. At a time when their world was crumbling around them they picked themselves up and united they moved forward in raising the profile of this life threatening condition to new heights. Annabelle's challenge is full of all the latest information and they work closely with EDS UK, they contacted and involved other people with vEDS (me for one) and brought us together to help support each other which is invaluable! They are amazing and I vote for them from the bottom of my heart and thank them for all that they have done already and all that that aim to do in the future x
Source: thebestof.co.uk
Annabelle's Challenge has worked closely with EDS UK to provide support and advice for those suffering with Ehlers-Danlos Syndrome - they are an incredible resource , especially to parents who are coming to terms with their children's diagnosis. EDS UK rely heavily on their involvement with our charity and have no hesitation that they should win this award.
Source: thebestof.co.uk
Hi is a very strong and lovely little girl, she is so full of life & she is a bundle of job
Source: thebestof.co.uk
These guys are an inspiration. They take commitment and hardwork to another level and we are proud to be associated with them.
Source: thebestof.co.uk
