Within weeks of my daughter's and my diagnosis of vascular ehlers danlos (the same condition as sweet Annabelle) I stumbled on their website. Through their website they provided advice, support and friendship through a very difficult time in our life. I thank the Griffin family for their understanding, kindness and passion to help others when already dealing with so much with their beautiful little princess. This site is an invaluable source of information for a condition that is so rare that even most doctors don't know about it. Keep up thr amazing work!!
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