WoW where to begin? well this family are an inspiration to all who receive a diagnosis of Vascular Ehlers-Danlos Syndrome. At a time when their world was crumbling around them they picked themselves up and united they moved forward in raising the profile of this life threatening condition to new heights. Annabelle's challenge is full of all the latest information and they work closely with EDS UK, they contacted and involved other people with vEDS (me for one) and brought us together to help support each other which is invaluable! They are amazing and I vote for them from the bottom of my heart and thank them for all that they have done already and all that that aim to do in the future x
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